Welcome!
Hi, I’m Alyssa, a wife and proud mom of two four legged friends, passionate about outdoor activities, home renovation, and all things fitness. I am hoping that by opening up about my history with fibrous dysplasia that I can help other families learn how to cope with everything that comes from dealing with rare diseases. Thanks for visiting!
First time to the site? Start here
From the blog
Posting new tips every week
About Me
Hi there, I’m Alyssa. At the age of 7, I was diagnosed with a rare disease called Fibrous Dysplasia. This is a health issue with no cures and affects very few. I had undergone nearly 20 facial surgeries before the age of 26, and am currently working on getting back to a good enough head space to go back to a doctor. I am hoping to share my journey in hopes that even one person going through any lifelong health issue can help feel that they are not alone in their journey.
Opening Up With Alyssa 